EndoUnfiltered · Advocacy
Take action for
endometriosis care.
Faster diagnosis. Better coverage. More research funding. Start with your own care or contact the people making policy.
Where to begin
Choose your next step.
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01
Keep a symptom record
Track pain, cycle timing, bowel and bladder symptoms, and missed work or school. A written history gives your provider a record of symptoms and their effect on daily life.
Use our interactive symptom tracker02
Ask for a specialist referral
If first-line treatment fails, ask directly for referral to a gynaecologist with endometriosis expertise, and ask for the refusal in writing if it is declined.
Patient resources03
Learn the guidelines
ACOG and ASRM guidance state that diagnosis should not wait for surgery. Bring the guideline to your appointment if you want to discuss diagnosis without surgery.
ACOG patient FAQ on endometriosis04
Contact your representatives
Ask them to fund women's health research proportionately to disease burden. Endometriosis receives a small fraction of the research funding given to conditions of similar prevalence. Name the bill or funding request and explain how the condition affects you.
Find your representatives by addressDraft a message05
Support research funding bills
Follow legislation on women's health research, fertility coverage and menstrual equity, and sign on when advocacy groups issue calls to action.
Guttmacher state policy tracker06
Push for workplace policy
Ask employers for flexible working, menstrual and reproductive health policies, and insurance that covers excision surgery and fertility care.
Workplace accommodation guidance from the Job Accommodation Network07
Join a clinical trial or registry
Registries and clinical trials rely on volunteers to study diagnosis and treatment.
Search ClinicalTrials.gov08
Back patient organisations
Donate to, volunteer with or share resources from the Endometriosis Foundation of America, the Endometriosis Association, Resolve, SisterSong and the Center for Reproductive Rights.
Patient resources09
Bring it into schools
Menstrual health education that names endometriosis helps young people recognise symptoms early. Ask your school board whether it is taught.
Draft a message10
Share reporting that is accurate
Share reporting with sources, including information on when severe period pain needs medical evaluation.
Patient resources
Write to your representatives
Ask for something specific.
Six policies to ask for by name
Back dedicated federal research funding, in the US, the Endometriosis CARE Act would direct sustained NIH investment to a condition that affects 1 in 10 and receives pennies per patient. Ask your representatives to co-sponsor it.
EndoFound's advocacy agendaYour message
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Direct contacts
Reach your representatives.
- Find your US House representative
By ZIP code, direct email and office phone.
- Email your members of Congress
Enter your address and write to both senators and your House rep in one go.
- 5 Calls, scripted advocacy calls
Turns an issue into a two-minute phone call to the right office.
- Find state legislators
Statehouses write most reproductive health law.