EndoUnfiltered
Endometriosis Outloud.
The median wait from first symptoms to diagnosis is seven years. We cover symptoms, the cost of care and lost work, and the latest research on diagnosis and treatment.
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Check your symptoms
Tick what you experience. You will get a list of questions to bring to your provider and the conditions they should rule out. Nothing you enter is stored.
Step 1 · Your symptoms
Nothing selected yet
Pain
Bowel & bladder
Bleeding
Whole body
Fertility
Step 2 · Questions to ask
- 1What do you think is causing my symptoms, and what else are you ruling out?
- 2Can you refer me to a gynaecologist with endometriosis expertise?
- 3Which scan is right for me, and who will read it? (A standard ultrasound can miss endometriosis.)
- 4What are my treatment options, including hormonal, pain management and surgical (excision) options?
- 5If you decline a referral or test, can you note that and your reasoning in my record?
Step 3 · Conditions to discuss
This guide helps you prepare for an appointment. It is not a diagnosis or medical advice. If you have sudden severe pain, heavy bleeding or fever, seek urgent care.
The financial impact
What endometriosis costs patients, employers and the economy
By the numbers
Endometriosis and reproductive health in numbers
Figures on prevalence, diagnosis and access to care.
190million
women and girls of reproductive age live with endometriosis worldwide, roughly 1 in 10.
Explore the endometriosis hub →Source: WHO fact sheet, updated 20257years
median wait from first symptoms to a confirmed endometriosis diagnosis, and up to a decade in many countries.
Learn the symptoms to name →Source: BJOG systematic review; RBMO, 202523%
of US women who saw a provider in the past two years say they were treated unfairly or with disrespect, more often than men.
Prepare for your appointment →Source: KFF Women's Health Survey, Mar 202541%
of US women of reproductive age, more than 31 million, live in the 22 states where abortion is banned or under threat.
Look up your state →Source: National Partnership for Women & Families, Jun 20251 in 10
women of reproductive age are affected by PCOS; up to 70% remain undiagnosed.
Read the WHO fact sheet →Source: WHO fact sheet, updated 20251 in 6
people of reproductive age experience infertility at some point in their lives.
Track fertility coverage law →Source: WHO first global infertility guideline, Nov 2025Access to care
Barriers to diagnosis and treatment
Clinic availability, legal restrictions and the response to reported pain affect access to care.
- 1
Lack of care
Clinic closures, specialist shortages and insurance gaps can make gynecologic care harder to find.
- 2
Loss of autonomy
State restrictions can limit the care patients and doctors may choose, including miscarriage care and fertility treatment.
- 3
Medical neglect
Women report being dismissed more often than men in healthcare settings. When pain is dismissed, patients may wait longer for evaluation and treatment.
Follow the policy →
The economic toll
What endometriosis costs, in plain terms
Years spent waiting for answers carry costs in lost work, lost income and interrupted careers.
$997every 6 months
added healthcare costs while endometriosis goes undiagnosed, for as long as the wait lasts.
Source: npj Digital Medicine US model, 2026 →
$6,829at diagnosis
estimated added cost of reaching an endometriosis diagnosis along the current US care pathway.
Source: npj Digital Medicine US model, 2026 →
$2,896for treatment
estimated added healthcare cost of treatment after diagnosis in the same US model.
Source: npj Digital Medicine US model, 2026 →
$1,392every 6 months
estimated productivity lost after diagnosis and treatment, per patient, in the same US model.
Source: npj Digital Medicine US model, 2026 →
Total, United States
$78 to $119 billiona year
Estimated annual US cost of endometriosis, combining healthcare and productivity losses, reaffirmed in the 2026 npj Digital Medicine model (npj Digital Medicine, 2026; Ellis, Munro and Clarke, 2022).
Per woman, Europe
€9,579a year
Average annual cost per woman across ten European countries, with productivity losses making up about two thirds (Simoens et al., Human Reproduction, 2012) and up to 75% of total costs in earlier reviews (Simoens et al., Human Reproduction Update, 2007).
Pregnancy loss
The costs continue after the long wait for a diagnosis. Across 28 studies, endometriosis carries a 31% higher relative risk of miscarriage (Wang et al., 2021). A Swiss study found a 35.8% miscarriage rate among pregnant women with endometriosis versus 22.0% without, rising to 50% among those who struggled to conceive (Kohl Schwartz et al., 2017). A Danish nationwide cohort links endometriosis to both pregnancy loss and recurrent pregnancy loss (Boje et al., 2023). Meta-analyses of assisted and spontaneous conceptions reach the same conclusion, though individual studies differ (Huang et al., 2020; Zullo et al., 2017).
The essay · Marigny deMauriac
$100 billionin estimated annual costs
The $100 Billion Blind Spot: endometriosis as an economic issue
Endometriosis costs the US economy an estimated $100 billion a year, yet it rarely enters conversations about women's pay, careers or retirement. A patient spends about $6,829 in the year of diagnosis alone, and roughly $1,392 in lost productivity every six months. Marigny deMauriac writes about those costs and her own wait for diagnosis and surgery.
Read the full essay →Research and news
The latest on endometriosis
New stories from vetted outlets appear here as they are published.
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Subscribe freeFrom the founder
Marigny deMauriac spent more than 20 years being told her pain was normal. She had symptoms before her first period, by age 14, and extremely difficult periods from 17. She was diagnosed with endometriosis and adenomyosis at 38. EndoUnfiltered exists so fewer women have to wait that long for answers.
Read her story